This is the official website of the Wilson’s Disease Support
Group – please take a look round.
WDSG-UK was founded in the year 2000 by Caroline Simms,
PhD, to provide a support network
for Wilson’s disease patients, their families and friends. Membership
is open to all and covers the cost of our annual newsletter.
If you are at all interested, please join.
News
2011 Newsletter now released and available
Visit the Newsletters area.
Support Group Meeting – Cambridge – Sunday
10 July 2011
Cambridge’s Rugby Union Football Clubhouse was
again the venue for the 2011 meeting of WDSG-UK, which was
well supported by Group members, their families and friends.
We were particularly pleased to see Allie Johnston and her
mother, who had travelled down from Edinburgh, and Kay Gibbs
and Dr James Dooley. WDSG-UK has strong links with the British
Liver Trust (BLT) and Richard Hall, the Support Group Co-ordinator
there, gave us an introductory talk in the morning about
the work and aims of the Trust. After lunch Dr John Walshe
presented a short historical and insightful account of Wilson’s
disease and its treatment.
A revised constitution for WDSG-UK was submitted to HMRC
last year as part of the Group’s successful application
for charitable status. One of the requirements of the constitution
is to hold an Annual General Meeting and to elect (or re-elect)
a management committee. After Dr Walshe’s talk the
first AGM of WDSG-UK was held. Dr Rupert Purchase reported
on developments over the last year, Valerie Wheater presented
the accounts for 2010/2011, and a management committee was
elected unanimously for the year 2011/2012. A short discussion
about future activities of WDSG-UK then merged with more
specific questions on Wilson’s disease for Drs Walshe
and Dooley, before the meeting closed with the customary
raffle and Group photograph.
Rupert Purchase
July 2011
WDSG-UK Management Committee 2011/2012
Chair
Rupert Purchase
Vice-Chair
Jerry Tucker
Hon Treasurer & Hon
Secretary
Valerie Wheater
Membership Secretary
Linda Hart
Member
Anne-Marie Styles
Charitable Status
Application for charitable status
Our negotiations with HM Revenue & Customs have been successful, and the Wilson's Disease Support Group - UK is now accepted as a charity for tax purposes (from August 19th 2010). We are now entitled to tax repayments under the Gift Aid scheme and we can look forward to the other advantages of recognition as a charity as our annual income grows.
Welcome!
Welcome
The Wilson’s Disease Support Group - UK (WDSG-UK) is an all volunteer
organisation which strives to promote the wellbeing of patients with
Wilson’s disease, their families and friends.
The organisation aims to provide informative
articles about the nature of the disease, articles
written by patients, families and friends, about
their experiences of the disease, recent progress
in treatment and much more by way of an annual
newsletter. The organisation also aims to promote
networking of Wilson’s disease patients
and their families by helping and encouraging
them to correspond with one another.
The organisation also strives to promote a wider
awareness of Wilson’s disease within the
medical profession.
Bonjour!
Groupe de soutien
aux personnes atteintes de la maladie de Wilson – Royaume
Uni
Le groupe de soutien aux personnes atteintes
de la maladie de Wilson – Royaume Uni (the
Wilson’s Disease Support Group – UK,
en anglais) est une association dont le but
est de promouvoir le bien des patients atteints
de la maladie de Wilson, ainsi que de leur proches.
Notre association fournie des articles qui décrivent
la nature de cette maladie. Ces articles sont écrits
par les patients eux même, leurs familles
et leurs amis et parlent de leur vie où la
maladie est constamment présente, des récents
progrès dans son traitement et bien plus
d’information est donnée dans une
lettre publiée chaque année. Un
autre but de cette association est de promouvoir
les contacts entre les personnes atteintes et
leur famille en les aidant et en les encourageant à correspondre
entre eux.
Nous essayons aussi de promouvoir une plus grande
reconnaissance de la maladie de Wilson dans le
cercle médical.
Bienvenidos!
El Grupo de ayuda para la enfermedad
de Wilson- Reino Unido
El grupo de ayuda para la enfermedad de Wilson-Reino
Unido (WDSG-UK) es una organización de
voluntarios que se esfueza en promover el bienestar
de los pacientes de la enfermedad de Wilson, así como
de sus familiares y amigos.
La organización tiene como objetivo el
proveer artículos informativos acerca de
la naturaleza de la enfermedad, artículos
escritos por otros pacientes, familiares y amigos
acerca de sus experiencias con la enfermedad,
los progresos recientes para el tratamiento de
del mismo, y mucho más por medio de un
boletín de noticias anual. La organización
tambien tiene como finalidad el promover el establecimiento
de una red para pacientes con la enfermedad de
Wilson y para sus familiares con el motivo de
ayudarse y darse ánimo mutuamente.
La organizacioón tambien se dedica en
mantener al tanto acerca de la enfermedad de
Wilson dentro de la profesión médica.
