WDSG-UK - Membership

If you are at all interested, please join.

Go to Membership Form

WDSG-UK 2017 Newsletter

2017 Newsletter

Gift Aid - Donations

WDSG-UK was granted charitable status by HMRC in 2010 and is recognised as a charitable company. As such, WDSG-UK is entitled to claim Gift Aid back on donations, where appropriate.

If you wish to make a donation to WDSG-UK and to Gift Aid it, please complete this form

If you wish to make a donation to WDSG-UK
visit the Virgin Giving website

WDSG-UK on Facebook

Join us on Facebook

WDSG-UK Pamphlet (2015)

View Interactive Online

Download Pamphlet



NHS Clinical Commissioning Policy Proposition for the use of Trientine for Wilson Disease patients (all ages)

May we draw to the attention of patients living in the UK the fact that NHS England has now published on its website https://www.engage.england.nhs.uk/consultation/trientine-for-wilson-disease/ a document entitled The Clinical Commissioning Policy Proposition for the use of Trientine for Wilson Disease patients (all ages).

This document is now open for public consultation and interested parties have until 22 September 2018 to respond with their comments via this link. It is recommended that all patients currently taking trientine read through the policy as it could affect YOU. If you would like further clarification or have any queries or concerns, do not hesitate to respond to the NHS directly.

Alternatively, email our Chairman, Jerry Tucker, at jerrytucker@wilsonsdisease.org.uk

Wilson's Disease Patient Register – UK

Any patients living in the UK who have been diagnosed with Wilson's disease, will be eligible to have their details entered on 'The Register'


WDSG-UK - A support group for all

This is the official website of the Wilson’s Disease Support Group – please take a look round.

WDSG-UK was founded in the year 2000 by Caroline Simms (PhD), and Linda Hart, to provide a support network for Wilson’s disease patients, their families and friends. Membership is open to all and covers the cost of our annual newsletter.

The Wilson’s Disease Support Group - UK (WDSG-UK) is an all volunteer organisation which strives to promote the wellbeing of patients with Wilson’s disease, their families and friends.

The organisation aims to provide informative articles about the nature of the disease, articles written by patients, families and friends, about their experiences of the disease, recent progress in treatment and much more by way of an annual newsletter. The organisation also aims to promote networking of Wilson’s disease patients and their families by helping and encouraging them to correspond with one another.

The organisation also strives to promote a wider awareness of Wilson’s disease within the medical profession.



Results of the 2018 Dingbats competition – London Stations.

Thank you to everybody who took part and congratulations to the winner, Ken Dunkerley of Chadderton, Greater Manchester.

Answers and the winner can be found by clicking on the image and downloading the results document.

WDSG Newsletter - 2017

Our 2017 Newsletter is now available to download on this website.

Visit our newsletters

WDSG-UK Annual Meeting & 8th AGM

Sunday 15 July 2018
Cambridge Rugby Union Football Club, Grantchester Road, Cambridge CB3 9ED

The Rugby Club (www.crufc.co.uk) is on the western outskirts of Cambridge, about 1.5 miles from the city centre. There is ample free car parking on site.

Google Map

For further details contact Valerie Wheater on val@wilsonsdisease.org.uk

A Message from Valerie

Our annual meeting is open to all WDSG-UK members and will take place in Cambridge on Sunday, 15th July 2018. It is a perfect opportunity to meet other patients in a relaxed and informal way.

For those of you who are not members of WDSG-UK, you would be very welcome to join us. Please email Val Wheater on val@wilsonsdisease.org.uk for further information.

Let's make this year's meeting the best yet !

You can view last years report below . . .

2017 Wilson's Disease Support Group – UK Meeting & 7th AGM

Sunday 23 July 2017

View our 2017 report

Availability of Penicillamine for UK Patients with Wilson's Disease. Updated January 2017

Following concerns about the supply of penicillamine for UK patients with Wilson’s disease, a hospital pharmacy has updated the information previously made available last year.

Download the statement

Wilson's Disease Patient Register – UK

WDSG-UK is delighted to announce the launch of the Wilson's Disease Patient Register - UK, the main aim of which is to support medical research into Wilson's disease.

Download the WD Patient Register Leaflet

View the Online Interactive Version of the Leaflet

We encourage you to register now:

Download - Registration Form (PDF)

Download - How the register will work (PDF)

Any patients living in the UK who have been diagnosed with Wilson's disease, whether or not they have received a liver transplant, will be eligible to have their details entered on 'The Register'.

If you are a Wilson's disease patient, or are the parent or guardian of a child with the disease, and you would like to participate, please download the Registration Form and send the completed form to Valerie Wheater, the WD Patient Register Co-ordinator, (details printed at the end of the form.)

Alternatively, for further details, please email her on val@wilsonsdisease.org.uk.

For the information sheet on how the Register will work, and to download the Application Form, please click on the above documents.

Research Requests

If you, as a clinician or research scientist with an interest in Wilson's disease, have a request or an initial query relating to the Register, please contact the Register Coordinator at the email address: val@wilsonsdisease.org.uk.

Request details should include the following:

  • Short synopsis of the research request including:
    • NHS or other Authorisation body details
    • Brief description of research, objectives and timescales
    • Patient involvement outline
    • Research contact details

Please note: a small WDSG-UK team will review and validate all research requests before agreeing to involve patients.

WDSG Management Committee

WDSG-UK Management Committee 2017/2018

Chair Jerry Tucker
Hon Treasurer & Hon Secretary Valerie Wheater
Member Mary Fortune
Member Caroline Simms