This is the official website of the Wilson’s Disease Support
Group – please take a look round.
WDSG-UK was founded in the year 2000 by Caroline Simms,
PhD, to provide a support network
for Wilson’s disease patients, their families and friends. Membership
is open to all and covers the cost of our annual newsletter.
If you are at all interested, please join.
News
2012 Newsletter
The 2012 edition of the WDSG-UK Newsletter has been published. Please let Linda know if you have not received your copy.
Support Group Meeting – Cambridge – Sunday 15 July 2012
This year's annual meeting of WDSG-UK will be at the clubhouse of the city of Cambridge’s Rugby Union Football Club on July 15th starting at 11.00 am.
We hope you will be able to join us.
Membership of WDSG-UK
Visitors to this site who are not already members of WDSG-UK might like to consider joining our Group. Subscriptions are £7.50 for UK residents or £10 if you live outside the UK. Membership forms may be downloaded from this website or alternatively please ask Linda for a copy.
Membership entitles you to a copy of the current Newsletter and also to an invitation to attend our popular annual meeting.
Our negotiations with HM Revenue & Customs have been successful, and the Wilson's Disease Support Group - UK is now accepted as a charity for tax purposes (from August 19th 2010). We are now entitled to tax repayments under the Gift Aid scheme and we can look forward to the other advantages of recognition as a charity as our annual income grows.
Welcome!
Welcome
The Wilson’s Disease Support Group - UK (WDSG-UK) is an all volunteer
organisation which strives to promote the wellbeing of patients with
Wilson’s disease, their families and friends.
The organisation aims to provide informative
articles about the nature of the disease, articles
written by patients, families and friends, about
their experiences of the disease, recent progress
in treatment and much more by way of an annual
newsletter. The organisation also aims to promote
networking of Wilson’s disease patients
and their families by helping and encouraging
them to correspond with one another.
The organisation also strives to promote a wider
awareness of Wilson’s disease within the
medical profession.
Bonjour!
Groupe de soutien
aux personnes atteintes de la maladie de Wilson – Royaume
Uni
Le groupe de soutien aux personnes atteintes
de la maladie de Wilson – Royaume Uni (the
Wilson’s Disease Support Group – UK,
en anglais) est une association dont le but
est de promouvoir le bien des patients atteints
de la maladie de Wilson, ainsi que de leur proches.
Notre association fournie des articles qui décrivent
la nature de cette maladie. Ces articles sont écrits
par les patients eux même, leurs familles
et leurs amis et parlent de leur vie où la
maladie est constamment présente, des récents
progrès dans son traitement et bien plus
d’information est donnée dans une
lettre publiée chaque année. Un
autre but de cette association est de promouvoir
les contacts entre les personnes atteintes et
leur famille en les aidant et en les encourageant à correspondre
entre eux.
Nous essayons aussi de promouvoir une plus grande
reconnaissance de la maladie de Wilson dans le
cercle médical.
Bienvenidos!
El Grupo de ayuda para la enfermedad
de Wilson- Reino Unido
El grupo de ayuda para la enfermedad de Wilson-Reino
Unido (WDSG-UK) es una organización de
voluntarios que se esfueza en promover el bienestar
de los pacientes de la enfermedad de Wilson, así como
de sus familiares y amigos.
La organización tiene como objetivo el
proveer artículos informativos acerca de
la naturaleza de la enfermedad, artículos
escritos por otros pacientes, familiares y amigos
acerca de sus experiencias con la enfermedad,
los progresos recientes para el tratamiento de
del mismo, y mucho más por medio de un
boletín de noticias anual. La organización
tambien tiene como finalidad el promover el establecimiento
de una red para pacientes con la enfermedad de
Wilson y para sus familiares con el motivo de
ayudarse y darse ánimo mutuamente.
La organizacioón tambien se dedica en
mantener al tanto acerca de la enfermedad de
Wilson dentro de la profesión médica.
Benvenuto!
Il Wilson’s Disease Support Group - UK
(WDSG-UK) è un’organizzazione composta
da volontari che si sforza di promuovere il benessere
dei pazienti con malattia di Wilson, delle loro
famiglie ed amici.
L’organizzazione mira a fornire supporto
informativo, attraverso un bollettino annuale,
che contiene articoli riguardanti la natura della
malattia, le esperienze dei pazienti, delle famiglie
e degli amici, nonché i recenti progressi
nel trattamento e molto altro ancora.
L’organizzazione mira anche a promuovere
una rete di pazienti con malattia di Wilson e
le loro famiglie aiutandoli e incoraggiandoli
a corrispondere tra loro.
L’organizzazione si sforza anche di promuovere
tra i medici una maggiore consapevolezza sul morbo
di Wilson.
Herzlich Willkommen!
Die Selbsthilfegruppe Morbus Wilson Großbritannien – (WDSG-UK) ist eine Organisation von Freiwilligen. Ihr Ziel ist es, das Wohlbefinden der an Morbus Wilson erkrankten Patienten, deren Familien und Freunden, zu fördern.
Wichtig ist uns dabei, informative Artikel über die Krankheit zu sammeln und in Form eines einmal im Jahr erscheinenden Mitteilungsblattes zu veröffentlichen. Viele Artikel darin werden von den Patienten selbst verfasst, oder deren Familien und Freunden und beschreiben Ihre Erfahrungen mit der Krankheit, aktuelle Behandlungsfortschritte und vieles mehr.
Auch soll die Kommunikation der Wilson Patienten und Ihrer Familien untereinander gefördert werden. Sehr wichtig ist uns außerdem, das Wissen um die Wilson Krankheit unter der Ärzteschaft zu verbreitern.
