WDSG-UK Pamphlet (2011)

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Welcome


WDSG-UK - A support group for all

This is the official website of the Wilson’s Disease Support Group – please take a look round.

WDSG-UK was founded in the year 2000 by Caroline Simms, PhD, to provide a support network for Wilson’s disease patients, their families and friends. Membership is open to all and covers the cost of our annual newsletter. If you are at all interested, please join.

News

2011 Newsletter now released and available

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Support Group Meeting – Cambridge – Sunday 10 July 2011

Cambridge’s Rugby Union Football Clubhouse was again the venue for the 2011 meeting of WDSG-UK, which was well supported by Group members, their families and friends. We were particularly pleased to see Allie Johnston and her mother, who had travelled down from Edinburgh, and Kay Gibbs and Dr James Dooley. WDSG-UK has strong links with the British Liver Trust (BLT) and Richard Hall, the Support Group Co-ordinator there, gave us an introductory talk in the morning about the work and aims of the Trust. After lunch Dr John Walshe presented a short historical and insightful account of Wilson’s disease and its treatment.

A revised constitution for WDSG-UK was submitted to HMRC last year as part of the Group’s successful application for charitable status. One of the requirements of the constitution is to hold an Annual General Meeting and to elect (or re-elect) a management committee. After Dr Walshe’s talk the first AGM of WDSG-UK was held. Dr Rupert Purchase reported on developments over the last year, Valerie Wheater presented the accounts for 2010/2011, and a management committee was elected unanimously for the year 2011/2012. A short discussion about future activities of WDSG-UK then merged with more specific questions on Wilson’s disease for Drs Walshe and Dooley, before the meeting closed with the customary raffle and Group photograph.

Rupert Purchase

July 2011

WDSG-UK Management Committee 2011/2012

Chair Rupert Purchase
Vice-Chair Jerry Tucker
Hon Treasurer & Hon Secretary Valerie Wheater
Membership Secretary Linda Hart
Member Anne-Marie Styles
Charitable Status

Application for charitable status

Our negotiations with HM Revenue & Customs have been successful, and the Wilson's Disease Support Group - UK is now accepted as a charity for tax purposes (from August 19th 2010). We are now entitled to tax repayments under the Gift Aid scheme and we can look forward to the other advantages of recognition as a charity as our annual income grows.

Welcome!

Welcome

The Wilson’s Disease Support Group - UK (WDSG-UK) is an all volunteer organisation which strives to promote the wellbeing of patients with Wilson’s disease, their families and friends.

The organisation aims to provide informative articles about the nature of the disease, articles written by patients, families and friends, about their experiences of the disease, recent progress in treatment and much more by way of an annual newsletter. The organisation also aims to promote networking of Wilson’s disease patients and their families by helping and encouraging them to correspond with one another.

The organisation also strives to promote a wider awareness of Wilson’s disease within the medical profession.

Bonjour!

Groupe de soutien aux personnes atteintes de la maladie de Wilson – Royaume Uni

Le groupe de soutien aux personnes atteintes de la maladie de Wilson – Royaume Uni (the Wilson’s Disease Support Group – UK, en anglais) est une association dont le but est de promouvoir le bien des patients atteints de la maladie de Wilson, ainsi que de leur proches.

Notre association fournie des articles qui décrivent la nature de cette maladie. Ces articles sont écrits par les patients eux même, leurs familles et leurs amis et parlent de leur vie où la maladie est constamment présente, des récents progrès dans son traitement et bien plus d’information est donnée dans une lettre publiée chaque année. Un autre but de cette association est de promouvoir les contacts entre les personnes atteintes et leur famille en les aidant et en les encourageant à correspondre entre eux.

Nous essayons aussi de promouvoir une plus grande reconnaissance de la maladie de Wilson dans le cercle médical.

Bienvenidos!

El Grupo de ayuda para la enfermedad de Wilson- Reino Unido

El grupo de ayuda para la enfermedad de Wilson-Reino Unido (WDSG-UK) es una organización de voluntarios que se esfueza en promover el bienestar de los pacientes de la enfermedad de Wilson, así como de sus familiares y amigos.

La organización tiene como objetivo el proveer artículos informativos acerca de la naturaleza de la enfermedad, artículos escritos por otros pacientes, familiares y amigos acerca de sus experiencias con la enfermedad, los progresos recientes para el tratamiento de del mismo, y mucho más por medio de un boletín de noticias anual. La organización tambien tiene como finalidad el promover el establecimiento de una red para pacientes con la enfermedad de Wilson y para sus familiares con el motivo de ayudarse y darse ánimo mutuamente.

La organizacioón tambien se dedica en mantener al tanto acerca de la enfermedad de Wilson dentro de la profesión médica.