Gift Aid - Donations

WDSG-UK was granted charitable status by HMRC in 2010 and is recognised as a charitable company. As such, WDSG-UK is entitled to claim Gift Aid back on donations, where appropriate.

If you wish to make a donation to WDSG-UK and to Gift Aid it, please complete this form


WDSG-UK - Membership

If you are at all interested, please join.

Go to Membership Form


WDSG-UK on Facebook

Join us on Facebook


WDSG-UK 2015 Newsletter

2015 Newsletter


WDSG-UK Pamphlet (2015)

View Interactive Online

Download Pamphlet


Affiliations

Welcome

The Wilson’s Disease Support Group - UK (WDSG-UK) is an all volunteer organisation which strives to promote the wellbeing of patients with Wilson’s disease, their families and friends.

The organisation aims to provide informative articles about the nature of the disease, articles written by patients, families and friends, about their experiences of the disease, recent progress in treatment and much more by way of an annual newsletter. The organisation also aims to promote networking of Wilson’s disease patients and their families by helping and encouraging them to correspond with one another.

The organisation also strives to promote a wider awareness of Wilson’s disease within the medical profession.


WDSG-UK - A support group for all

This is the official website of the Wilson’s Disease Support Group – please take a look round.

WDSG-UK was founded in the year 2000 by Caroline Simms (PhD), and Linda Hart, to provide a support network for Wilson’s disease patients, their families and friends. Membership is open to all and covers the cost of our annual newsletter.



IMPORTANT NEWS

2016 Wilson's Disease Support Group – UK Meeting & 6th AGM

Sunday 24 July 2016

View this year's report


Statement - Update, March 2016

Availability of Penicillamine for UK Patients with Wilson's Disease

Following concerns expressed earlier this year about the supply of penicillamine for UK patients with Wilson’s disease, a hospital pharmacy has updated the information previously made available to WDSG-UK in January 2016.

Download the statement


WDSG Newsletter - 2015

Our 2015 Newsletter is now available to download on this website.

Visit our newsletters


Wilson's Disease Patient Register – UK

WDSG-UK is delighted to announce the launch of the Wilson's Disease Patient Register - UK, the main aim of which is to support medical research into Wilson's disease.

Download the WD Patient Register Leaflet

View the Online Interactive Version of the Leaflet

Download - Registration Form (PDF)

Download - How the register will work (PDF)

Any patients living in the UK who have been diagnosed with Wilson's disease, whether or not they have received a liver transplant, will be eligible to have their details entered on 'The Register'.

If you are a Wilson's disease patient, or are the parent or guardian of a child with the disease, and you would like to participate, please download the Registration Form and send the completed form to Valerie Wheater, the WD Patient Register Co-ordinator, (details printed at the end of the form.)

Alternatively, for further details, please email her on val@wilsonsdisease.org.uk.

For the information sheet on how the Register will work, and to download the Application Form, please click on the above documents.

Research Requests

If you, as a clinician or research scientist with an interest in Wilson's disease, have a request or an initial query relating to the Register, please contact the Register Coordinator at the email address: val@wilsonsdisease.org.uk.

Request details should include the following:

  • Short synopsis of the research request including:
    • NHS or other Authorisation body details
    • Brief description of research, objectives and timescales
    • Patient involvement outline
    • Research contact details

Please note: a small WDSG-UK team will review and validate all research requests before agreeing to involve patients.


Membership - Become a WDSG UK Member
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WDSG-UK Management Committee 2016/2017

Chair Rupert Purchase
Vice-Chair Jerry Tucker
Hon Treasurer & Hon Secretary Valerie Wheater
Member Anne-Marie Styles
Member Mary Fortune
Member Caroline Simms